Your Role is Crucial
No matter who you are a parent, a young adult, or a supporter you can make a real difference. Your involvement can drive forward the research and advocacy that will lead to better treatments and outcomes for everyone affected by CAKUT.
Ways to Make an Impact
Join the Registry: Be part of the foundation for new therapies by joining our patient registry. Your data is essential in shaping the future of CAKUT treatments.
Share Your Story: Your journey can inspire and educate others. Whether you're a young adult who’s navigated CAKUT or a parent advocating for your child, your voice can drive awareness and support.
Volunteer and Advocate: Get involved in our campaigns, whether it’s fundraising, community outreach, or educational initiatives. Every action brings us closer to a world with better outcomes for CAKUT patients.
Support Research: Your donations fuel vital research and help accelerate the development of new treatments.
Adults: Your Voice Matters
As someone who’s grown up with CAKUT, you bring a unique perspective that can shape future therapies. Join us in making a difference your experiences can inspire change and drive innovation.
Join the CAKUT Community
If your child has CAKUT, or you are an adult who grew up with it, you do not have to navigate this alone.
We are building a space where families can share real experiences, ask hard questions, and find the guidance we all wish we had earlier.
By joining our CAKUT registry, you will gain access to:
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Other parents and patients who understand exactly what you're facing
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Insights into the latest treatments and research
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Practical advice for protecting your child’s kidney health not just now, but for the long road ahead