Support and Resources
CAKUT stands for Congenital Anomalies of the Kidney and Urinary Tract. That means something about the way the kidneys or urinary system formed during pregnancy is different from usual. These differences happen before birth, and they can affect how well the kidneys work.
CAKUT is one of the most common causes of chronic kidney disease in children. It includes a range of conditions that can be mild or serious, and some kids might not show symptoms until later in life.
Personalized Support & Webinars
Connect, Learn, and Grow Together
Every CAKUT journey is unique, but you don't have to navigate it alone. Join our one-on-one mentorship programs and group webinars to connect with others who understand your path. Gain insights, ask questions, and find support in a community that cares. Every session is tailored to your needs, ensuring you get the most relevant advice and encouragement.
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Your CAKUT Resource Library
Everything You Need, All in One Place
Dive into our extensive library of resources designed to help you manage CAKUT. From tips on boosting hydration and choosing kidney-friendly foods to understanding your lab results and preparing for doctor visits, our curated guides cover it all. Every piece of information is tailored to help you and your child thrive.
Get access to our full resource library. Share a few details to receive customized resources that fit your needs.
Community Stories
Real Stories, Real Support
You are not alone on this journey. Explore real-life stories from our community of CAKUT warriors and families. Watch TikTok and Instagram stories of individuals who have walked similar paths, sharing their triumphs, challenges, and tips. Let their experiences inspire and guide you.
Do you have a story to share? Join our community by sharing your journey and connecting with others.
Resources
Newly Diagnosed?
A quick-start guide for families to understand CAKUT and get the right care from day one.
School & Daily Life Tips
Tools and tips to help kids with CAKUT thrive at school, during play, and daily routines.
CAKUT as an Adult
Learn how CAKUT affects adults from kidney monitoring to fertility, work, and wellness.
Kidney Friendly Eating
Simple, everyday food tips to support kidney health for kids, teens, and adults with CAKUT.